Wednesday, 5 March 2014
a difficult decison to be made....
Before edison surgery..we had seek 2nd opinion with Mount E on edison case. We are given different protocol and different opinion. We need to make a decision ...should stay or switch? I post my concern on Neuroblastoma US FB and hoping to get advice but none. I thinking should we seek for 3rd opinion with Prof Quah from NUH to help us decide. I remember i cried to my church gathering frenz when i pour out my dilemma. I am very stressed stay or switch cos afraid of making wrong decision. I glad i pour out my worries to them. Cos i always remember they say " Let God decide and cast ur worries to him and choose the one which u feel more comfortable or give u peace". The next nite.. i still remember my hubby pass me bible to finds words that Gods want to tell us. But no avail. I told him i pray instead. On that very nite.. i sit down and think alone. ... In my inner thoughts, I feel more comfortable and peace with mount E. Cos kkh unconfirmed rounds of chemo terrifies me. Cos more chemo = more toxins into his body = more late side effects. Afraid harvest later will not have collect enuff stemcells. Afraid more chemo might make him not fit for transplant or have complication during transplant. Whereas Mount E i only worries for : will harvest stemcell with contaminated bone marrow affect quality of stemcells. But was told by confirmed reserach studies it won't. What happens If high dose chemo + mibg never clear his contaminated bone marrow. ..should i take this risk? Deep down.. i ask myself..if i am in edison shoes..which one will i choose. I will choose mount E cos mount E give me certainty when the treatment will be finished and mount E got mibg therapy which boost up the protection of preventing relapse. But i dun know is tis the wise decision or not and pray for jesus to give me direction me by direct hinting me. The next day, i attend church service and pastor keep repeating this sentence on stage" dun need to understand, dun need to understand how, just have faith in God. Feel that i had made the right decision . My one and only worry for mount E : will high dose chemo and mibg able to cleared his bone marrow? Pastor words telling me dun need to understand and just have faith in God. When we exit from church, told my hubby i had made my decision and dun need to seek 3rd opinion. Told him i had decided on mount E protocol cos i believe God will clear his bone marrow. So coincidence or fated, he told me he also had made the same decision cos he dream of Mount E yesterday. And Yes! We switched edison to Mount E for his future treatment.
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