the worst period after his 6th chemo

Hi!! Long time never update my blog. The reason was : edison had his worst or most lousy period after his 6th chemo. On his 2nd day of chemo...he got no appetite at all.. vomit and diarrhea till i almost surrender with white flag. Throughout the 4days chemo...he never eat and i was stressed but was reassured by dr that it okay cos he was on drip. When his chemo ended, the next day..he was arranged for dental extraction: removed 2 teeth and filling 4 teeth and polished all his teeth. All these are done under GA. Post surgery, 6th chemo and dental issue had taken a toll on his fragile body. He got no appetite and not eating for almost 12days...survive on 100 plus only.. My heart breaks and pain soo much that tears keeping rolling down my cheek. I was super super stressed.. tis is the most stresssful period i had been through. I still remember when i admitted him to hospital bcos of dehydration...he only weighted 13.8kg...he was sooo thin. He was slightly better after discharge for 2 day hospital stay but still no appetite. Tried means and way to coax him to eat but no avail. Luckily, edmund brainwashed and tempted him with Mac nuggets and fries , pancakes, ice cream , coke and milo. I know these are unhealthy food but to me..as long as he eat or drink  and have calories...it a happy news to me . Glad that this idea works but he only have appetite for Mac for Every meal....omgosh!! Finally he put on some weight ( 15kg) before his harvest stemcell procedures. I am really not looking forward for his 7th chemo cos same drugs and lousy period will start all over again. Arrgghh!!! In the name of Jesus, i command no sides effects on edison for his 7th chemo..he will tolerate well !! AMEN .

a difficult decison to be made....

Before edison surgery..we had seek 2nd opinion with Mount E on edison case. We are given different protocol and different opinion. We need to make a decision ...should stay or switch? I post my concern on Neuroblastoma US FB and hoping to get advice but none. I thinking should we seek for 3rd opinion with Prof Quah from NUH to help us decide. I remember i cried to my church gathering frenz when i pour out my dilemma. I am very stressed stay or switch cos afraid of making wrong decision. I glad i pour out my worries to them. Cos i always remember they say " Let God decide and cast ur worries to him and choose the one which u feel more comfortable or give u peace". The next nite.. i still remember my hubby pass me bible to finds words that Gods want to tell us. But no avail. I told him i pray instead. On that very nite.. i sit down and think alone. ... In my inner thoughts, I feel more comfortable and peace with mount E. Cos kkh unconfirmed rounds of chemo terrifies me. Cos more chemo = more toxins into his body = more late side effects. Afraid harvest later will not have collect enuff stemcells. Afraid more chemo might make him not fit for transplant or have complication during transplant. Whereas Mount E i only worries for : will harvest stemcell with contaminated bone marrow affect quality of stemcells. But was told by confirmed reserach studies it won't. What happens If high dose chemo + mibg never clear his contaminated bone marrow. ..should i take this risk? Deep down.. i ask myself..if i am in edison shoes..which one will i choose. I will choose mount E cos mount E give me certainty when the treatment will be finished and mount E got mibg therapy which boost up the protection of preventing relapse. But i dun know is tis the wise decision or not and pray for jesus to give me direction me by direct hinting me. The next day,  i attend church service and pastor keep repeating this sentence on stage" dun need to understand, dun need to understand how,  just have faith in God. Feel that i had made the right decision . My one and only worry for  mount E : will high dose chemo and mibg able to cleared his bone marrow? Pastor words telling me dun need to understand and just have faith in God. When we exit from church, told my hubby i had made my decision and dun need to seek 3rd opinion. Told him i had decided on mount E protocol cos i believe God will clear his bone marrow. So coincidence or fated, he told me he also had made the same decision cos he dream of Mount E yesterday. And Yes! We switched edison to Mount E for his future treatment.

surprise pre birthday celebration.

1st famuly photo!! 

I wish edison Cancer free !! 

With my loving hubby ..

My pretty miniature of me !! 

On sunday 2th march...i had a surprise birthday party organised by ur dearest buddies : xiu e, sis, rina, rina mum and linda family !! Whoa ...it had been a long time i celebrated my birthday..thks u buddies for reminding me i am 1 yr older...but i love it!!  An unforgetable and surprise birthday party !!

a trip to the zoo with cousins

Cousins photo !! 

 Chips soo yummy !! 

Feedsing goats 

Family photo

Siblings feeding

1st pony ride

Cheese !! 

Edison fav igloo

Soo happy !! 

Yes !! We did it again . An outing to the zoo with chemo child on sat 2/3/14 with his cousins. Praise God for the good weather !! Photo speak a thousands words...see how they have enjoyed themselves!!

a testimony to share

Above left pic is edison tumor and right pic is the kidney that had been removed from his body. I will like to say a priceless thank you to NCC CG and everyone for upholding prayers for edison. Thank you God for his surgery to be a successful one and he recovered amazing well..even his surgeon also said he recovered soo much faster and better than other kids. PRAISE God!! When edison left kidney was removed during the sugery on tuesday..i was very sad cos he was born with 2 healthy kidneys and the tumor had destroyed one of his kidneys. On that very SAME night 10.30pm ..channel 8 was screening 星期二特线 - this nite topic was abt a twin born- Sister is healthy but brother is born without kidney. Her mother had to donate 1 kidney to him. However after transplant , his  body reject and the kidney spoilt. And he had no kidney again. He had to go for dialysis at such a young age..3 yrs old . His only hope is for people to donate just 1 kidney and he can resume normal healthy life again. His wish is granted after few years. Upon seeing this show, i feel that God is trying to pass me a msg  not to be upset over the loss of edison 1 kidney. With just 1 kidney, he will still live as a healthy boy. PRAISE God!!