4th day of 5th chemo

Today he vomited 4 times. Whatever he eat and drink..he just vomit out !! Unlike last time, he will always cry after vomit. He seems to have grow up liao. Instead of crying...he asked in a calm manner after vomit. " MUMMY , Y vomit? Izzit bcos i cannot pass the motion devil out and hence i vomit out " and i told him Yes ! And then he asked " so, vomit is ok" and i say Yes ! And he feel relieved after hearing it. Dunno is bcos he had grown up or he had vomit till used to it liao...hee hee !! Tdy edison is very happy nancy ( from new creation church) came to visit him. They had a fun time playing and praying and edison was taught a new way to relieve his stomach pain. SPEAK in the name of Jesus to take away the pain. I will definitely  use it often !! Thks u very much church members for coming over my place and hospital to pray over edison and me!!

3rd day of chemo 5

Yesterday is the 1st time i left my helper sleep with edison in hospital. He was sound asleep after i came bk from my dinner date with edmund. I am very happy to go bk my home sweet home to sleep and see my other 2 little darlings. Phew !!! He slept whole nite throughout.

2nd day of 5th chemo

Phew !! Edison only vomit 1 times tdy. So far still so good. Very small appetite. But i told myself .. very small appetite is better than nothing. At least no vomiting ...it ok liao. Learn to relax and dun pull soo tight cos this is a long & diffiicult marathon😊

9th Jan 2014- a testimony to share

 I know one of his side effect of chemo is stomach pain. Everytime after chemo, he will always complain of stomach pain. He can complain till he shed many many tears. The worst pain he had is after 3rd chemo. That is the worst chemo he had. He vomited like merlion during and after chemo. No appetite at all during the chemo and almost 1 wk after chemo. He was also crying in pain ( keep complain stomach pain..stomach pain). Me asked doc for medicine but no results. 3rd chemo is also the time where my Faith goes to the rock bottom. Cos i feel my prayers are unanswered. Edison bone marrow scan test result - cancerous cell( biospy)  found prior to 1st chemo. Cancerous cell( scan) not found after 1st chemo. Cancerous cell (biospy) found again. Edison vomited merlion during n after chemo. My Faith is almost zero that i dun feel like praying . A miracle happen and my Faith bounced bk to me once again. Edison had the worst stomach pain on his 3rd chemo. Doc prescribe many medicine to relieve his pain but no avail. Edison told me he want to drink lemon juice continuous for 2 days . But i did not give him cos i was thinking lemon juice is acidic and it not suitable cos he having intense stomach pain. Till the 3rd day, i was getting helpless cos no medicine work and he was crying in pain and i goggle for help for remedy to relieve stomach pain from chemo. I almost cannot believe what i read. Lemon juice is acidic but once drink ...it become alkaine and it will soothe stomach pain. Upon seeing this, i immediately prepare the lemon water for him and it really works for him. On that day onwards, me give u lemon water without fail. Not only that...it was few more days and xmas is coming. Everyday he will repeat to me the same sentence... Mummy tdy is wat date, after 25th dec...my stomach will not pain anymore. GOD really do miracles on him. On xmas eve , we had a mini xmas party at our place and he slept after midnite and  on this particular nite onwards...he never complain stomach pain during the day and during sleeping at night. GOD know that my Faith is almost zero and by witness all these miracles ...my Faith had immediately  bounced bk. Thank you God for always around us !!!

1st day of 5th chemo

Hi !! Almost 2wks MIA. Busy take care of him after he discharge from hospital for his last chemo. Summarize what happen during the past 2 wks: he was down with uclers on his tongue and white blood cell drop to lowest record 0.18 on 13th Jan. That was his first time having ulcers and in the name of Jesus, it will also be the last one!!! He was crying in pain and me immediately bring him to kkh and again, we are admitting again. But i'm glad that we were admitted cos he was given numbing medicine & he feel soo much better. Bcos of the uclers..his weight drop again. Thank you God. after discharge, he had good appetite and had gained bk his lost weight!! Last Mon 20th Jan, i brought him to citysquare mini funfair rides ( at the main entrance , outdoor ) . Tis is my 1st time after diagnoised brought him out. His usual outing is KKH only. I am very stressed when i

made tis outing cos afraid he might get sick bcos of his low immunity. I pray before and during our outing. Have Faith in God and Off we go !! When edison saw the mini funfair ....he was Super  very happy. He was busily buying ticket and sitting on every rides. The joys and smiles on his face ....told me i had made the right decision!! I will always remember happy tears was rolling down my cheek when i sit the pirate boat & merry go round with him . It was an awesome day !!! Will try to update photo and video.

last day of 4th chemo

Finally, 4th chemo treatment is Over. He did vomit 3 times tdy but this is nothing compared to his 3rd chemo. Even though he dun have appetite to eat but i am happy that he finished 1 bowl of nutritous porridge ( beetroot, carrot, brocoli and frogleg) cooked by one of the mummies in oncology ward. I am surprised that he ate finished cos he always say NO to vegetables. Will try to cook for him when we go bk and pray hard he will eat.  Tdy we will suppose to discharge but i pray that his red blood will be low and he can have blood transfusion be4 discharge. Funny prayers ...rite?? The reason being that from his record, he always need blood transfusion after every chemo and inserting the needle and removing the needle is painful and scary to him. Always cry and struggle when doing tis procedures. 1st chemo till 3rd chemo - always need to do 1 blood transfusion during his routine check up. Hence i prayed his red blood is low before discharge( before removing the needle) and hospital can do blood transfusion and hence during his routine checkup, he can avoid doing liao. BINGO !! Prayers answered.

3rd day of 4th chemo

Phew !!! Tdy edison no vomitting and teeth no pain ( edison prayers are answered). But his appetite so so only and make me stressed of his weight.. tis is motherhood( always soo uptight)  ...will still dig out something to stress even everything went smoothly..  Tdy is sunday and it KKH routine to have patients have their weight taken. Before edison step on the scale..he shake his head and  told me weight sure drop cos he not eating much these few days. The moment the scale show edison weight, he give me a stunned and surprised look.. me too was surprised!! Cos instead of losing weight, he had gained 0.4kg these 3 days.  He asked me Y? I happily told him cos he never vomit. Till now i still dun believe he gain weight instead of losing weight during the hospital stay. I feel  God is trying to tell me to relax and not soo uptight of his weight.  ( Since day 1 of his  1st chemo...my life priority had totally changed. My life  is only involve in his WEIGHT.  My main goal during his treatment is one and only : not losing weight -either gain or maintain his weight is my ultimate  goal - cos for chemo patient , losing weight is very common and expected . BUT I keep telling myself edison will either gain or maintain his weight cos with good weight..he will have the immunity and energy to fight with his devil. Hence, i am always very stressed out his food intake, appetite and everything regarding his weight. Whenever he say  the below sentence...😊it will always brighten up my day " "mummy , i am hungry "" - tis short and simple sentence will immediately bring Joys and smile to my face. I am edison mummy, nanny, playmate and soulmate. I have to always crack my head to find games to play with him , coax him , watch tv with him , do works with him so that he can EAT more. That the reason y i am also soo busy when taking care of him. Even he is sleeping.. i will still try to insert milk into his mouth ...hee hee 😜. Everyday  i am only concern  & focuse abt his weight only. Tdy edison  0.4kg weight gain had knocked Senses to me ( he was 17kg prior to his 1st chemo and as such, he had gained 0.4kg ) .  GOD is telling me not to get soo stressed and uptight of his weight. Even edison got no or little appetite.. he still gain weight. Hence ONLY THINK OF TODAY AND DUN STRESS OF TOMORROW OR FUTURE COS EVERYTHING IS UNDER HIS CONTROL. Praise the God!!

2nd day of 4th chemo

Yes ! Yes ! My edison finally passed out his motion ... phew!! Not only that ..my daughter who also constipated also finally pass motion tdy ! ! This is parenthood..u need to worry top to toes of our children...even SHITTING also had to worry ....hee hee !! Tdy edison also survived without vomitting. Praise the God !! Lucky 2day got 2 volunteers came ard to distribute balloons and the balloons brighten up his day ....children are soo easily satisfied ...that the joy of being children!! Ooooppppsss... edison just now was crying into sleep.. his 2 front teeth had decayed faster bcos of chemo...make him soo pain !! Going to pray later that his pain will go away and guide the doc the wisdom to prescribe right medicine to relieve his pain and he can have extracting of his decayed teeth asap with no side effects and pain. Good nite everyone !!

3th Jan 4th Chemo day 1

Tdy i was told by the nurse that they will reduce anti vomit medicine for edison cos the medicine is steriod and edison BP is on the high side ( average 120) and by giving higher dose steriod will increase his BP. I am super worried and tdy i keep asking edison to pray NO SIDE EFFECTS on this chemo. Till now 11pm.. he still his old self..active and good appetite and no vomiting. PRAISE THE GOD!! 2morrow will ask him pray hard hard again..hee hee !! Ooppss forget to ask him pray constipation go away. Constipated for 3 days liao. OmG!!

2nd Jan 2014. Today edison admit for his 4th chemo. I am surprised and impressed with him. He never cry or struggle for his routine blood test. After his blood test, he told me " mummy i never cry cos i am 5 yrs old now" !! Big cheers to hear it. What a great start of my 2014.

GoodBye 2013!

I can't wait to say Goodbye to 2013. Cos 2013 is the worst year in my whole life. My dad 67 years old was diagnoised with stage 4 colon cancer and passed away within 1month. He passed away peacefully on 20th october 2013. And this is not the worst. On this 10th oct 2013, edmund was overseas and i bring edison to polyclinic to test his blood cos afraid was dengue fever cos his fever had been going up and down for 5days. 

After blood test, was told not dengue fever but his white blood count is very low. Ard 7. Suspected might be amenia. Immediately asked me to go KKH for further testing. Upon reaching KKH, after checkup ( doc checking his stomach) ..was told it might be spleen swollen and asked me to admit. Next day , edison did his ultrasound and it was this day onwards...my nightmare begin. I was told that the ultrasound report was out and spleen is ok. But they had found a huge tumor above his left kidney and suspected to be childhood cancer. The next few day..edison was undergo many testing..CTScan, bone scan, biospy, xray. This was too much for me to handle and i am glad that i have my friends and family for support. I called edmund and he immediately flew bk. On the 16th october, it was confirmed that edison was diagnoised with Neuroblastoma stage 4 cancer ( tumor 12.8 x 8.8 x 7.6 cm and had spread to bone marrow). This childhood cancer is very rare in singapore. Estimation : 1 yr only 6-7 children will have it. Edison have to undergo 9mth-1yr treatment ( chemo, surgery, stemcell and radio therapy) and survival rate is 40%. On 17th , we had family conference meeting with kkh of his treatment and 18th, we seek 2nd opinion with Dr Chui Chan Hon at Mount Elizabeth. I am glad that my buddy irend had found this surgeon for me. After talking with Dr chui, i feel soo much better after he tell me this word which i will always remember. Once u make the decision to go for the treatmemt, dun think abt the 40% survival rate.  Instead u should tell urself the survival  rate is 100% cos if never go treatment , the rate is 0%. With Dr Chui expertise, i know my edison  will be in great hands. This will be a long surgery but i know in my heart.. it will be a successful one. This surgery will take place after either 4th or 5th chemo and i really cannot wait Dr chui will take out the monster from edison stomach. On 20th oct  early morning, my dad had passed away and in the afternoon i need to admit edison to Kkh for port surgery and start his 1st chemo. This 20th oct is a black day and a day i hated it very much. I am really glad i got hubby, family and friends support and i managed to get through. Without them, i think i definitely get depression. 20th oct -31th dec is just ard 75days but i had learnt a lot. This journey is a tough and difficult one. Through this journey, i had realised dun take things for granted. I had apprrciate my parents cos now i know parenthood especially motherhood is very tough cos mother 1st priority is always children. I had realised i had very supportive neighbours, friends and family members. They are always there whenever i need them . One last person & also most important person : i feel Love from God. GOD is always there for me. Before edison was diagnoised..i am just neutral to God. Only pray to him whenever i need help only. Will forget him when i am smooth sailing. I live in the world where i feel that i can depend on myself. Fate is controlled by my own hands. But when edison was dignoise with cancer, i feel soo helpless. I even blame God y this is happening to me. I even though that izzit God created this to happen to make me realised something. Glad that my frenz Huiling is ard me . She make me realised that it is the devil and not God created this cancer. She make me realised i can run to God anytime when i wan . 

GOD NEVER FORSAKE ME. GOD WILL TURN WHATEVER NEGATIVE INTO POSITIVE. GOD CAN CREATE MIRACLES. What i need it FAITH!! I dun need to do anything more. I just need FAITH. And Yes!! GOD IS REALLY THERE FOR ME. HE IS AN ALIVE GOD. Whatever i prayed , he is listening and answer..some is immediately and some is in the future. Without God, i really dunno how to get through. I am glad that he is always here with us and with him ard..i know edison tough journeys will be in goods hands and i do not need to worry. I had already cast all problems to God and i know edison is in good hands. 

MY ONE AND ONLY WISH FOR 2014 is  EDISON WILL BE CANCER FREE & HE WILL BE THE GOD WALKING TESTIMONY!!