PET scan

Waiting for the PET scan. 

Lying on bed ..ready for scan !! 

Off he go!! 

On wednesday 16th July, I brought Edison to hospital with a super heavy heart !! Hate this feeling!! He going for his PET scan tdy to check if he got relapse ....arrgghhh... tears streaming down when i see him.. Y this 5 yrs old kids need to suffer soo much ... he needs to fight with cancer devils  to survive. Y he is not like those normal kids who can enjoy their childhood...so many Y Y Y in my super headache brains.. haix haix!! Once again, edison did those big machine scan effortlessly . No sedation needed. Just Jesus songs can make him lie still ...Proud of him!!! Whenever I hear edison singing Jesus songs, i am moved and encouraged by him!! Once again, my fighting and positive spirits is immediately lifted!!! My heart beats soo fast when doctor going to review his PET scan report ..these words will always ringing in my ears " the scan is clean. No relapse" Praise God!! My tears stream again but this round is overwhelming tears...Yes Yes..God is Good!! Was told bcos the scan is clean.. it mean that the positive bone marrow is the residues from previous chemo. He just need to continue his oral medication for the residues treatment. Thank you Daddy God for watching over Edison.. I Love you!! 

15th July 2014 Edison 5th Birthday

Today is 15th July 2014. Edison is 5 yrs old today. Times flies soo fast. On this special day, i received a bad news from his doctor. His bone marrow assessment report is out: left side is positive with NB cancer cells. Upon hearing tis news, tears streaming non stop...Edison, the reason y mummy is crying non stop today is bcos of this report and not bcos u are naughty!! Arrgghhh!!! Cancer sucks !!! His left bone marrow is cleared after 6th chemo. How come it tested positive again !!! Endless endless of Y Y Y in my head!!!! After calming down , edmund called the doctor to know more infor. Was told that edison urine marker is normal. Hence they need edison to do PET scan tmr to check the NB cell in the bone marrow is positive or negative. Positive - new NB cells growing. Negative - old/residue NB cells dying. In the name of Jesus, i declared Edison is forever Cancer free. PET scan report will be the good news we are awaiting for. AMEN!!!

8th July bone marrow assessment

Sleeping after sedation. 

On 8th July, Edison went for his 1st bone marrow assessment ( his treatment protocol ended last wk).  Need to wait 1 wk for the report out. I believed that Daddy God is watching over him and report will definitely be good news!! Update once I got hold of the report!! Today is his longest outpatient stay, doing bone marrow assessment, platelets and red blood transfusion and wbc booster. This is good so he only have 1 port insertion and all done at 1 go!! Next FBC should be next wk cos tis wk will be stable! That great cos he will be busy for his birthday celebration this coming weekend!! Hippy horrary!! 

NUH CCF July birthday party

JULY Birthday at NUH CCF !

Busy doing his arts and crafts. 

His finishing works!! 

 

His pic !! 

Birthday party start 😊😊

Cake cutting !! 

With mummy !! 

Open presents specially given by CCF san san 

His fav cartoons jacket and slippers. 

Cute  ?? 

Hippy horray!! Edison love July very much!! This mth is his Birthday month!! On 4th July, I brought Edison to NUH CCF July Birthday party. He was soo excited and counting down when i told him 1 wk ago. Told me this is a great place!! The joys on his face is worth the long drive...😊😊. He was the only july children attending the party. In the end, it look like his birthday party instead! CCF gave him his fav cartoon angry bird balloon, people singing birthday song to him, he cut the cake and receive presents( his fav again : angry bird jacket and slippers). He love the party to his max!! I feel soo encouraged and proud of his selfless birthday wish  " I wish Jesus to protect Everybody !!" AMEN!! Holy spirits had guided him very well. 

Testimony to share

Waiting for the show to start! 

Edison volunteer for the show 

During his 1st 100 days after transplant, edison is suppose to stay at home and hospital visit only. Instruction by his doctor cos BMT take longer to recover and counts not stable. However, i believe he is well protected by the invisible shield Jesus had covered him. I brought him to his Treasured class every sunday cos he always countdown to sunday and very eager to go church. I brought him to NUH CCF activities ( magic show, art therapy and july birthday). By God Grace, he never caught any infection. A testimony to share: last month.. our kovan house was infested with bugs. Everyone were sick: Rick fever and runny nose, karen fever and coughing. All 5 adults were coughing. We try to take precautions to prevent edison caught the bugs. But it really difficult cos all of us stay in the same roof and edison immunity counts  is only 1.14-1.5 ( average healthy child immunity is 10) mean he had Very Low Immunity.   We prayed to daddy God every nite that germs , bacteria and infection will not touch edison. Subsequently, Karen caught HFMD and we faster isolate her at toa payoh. 4days later, rick also got red spots on his legs and palm...arrgghhh...HFMD too!! Plan changed: we shifted karen bk to kovan so 2 HFMD can play with each other and edison and i shifted to geylang. My heart was thumping thumping.. will edison caught the HFMD ?? I brushed off my negative thoughts and continue our nightly prayers. Praise God!! By God Grace, not even a single bug touched edison... no HFMD, no runny nose , no fever and no coughing!! He is healthy!!!  He is super shield and protected and watched over by daddy God!! AMEN!! 

hippy horray!! Edison last treatment.

Edison in Radiation room. 

Hippy hooray. Treatment over. 

Finished his 11 radiation. 

Long time no updates. On + Day 46, edison went for his 1st radiation treatment. He need to receive 11 rounds of radiation. Was soo worry he cannot lie still for his radiation cos he will be alone in the room for ard 2mins. 2mins for adults is nothing. But for a 5yrs old kids with those big machine surround him and beams of infra lights and no sedation is a challenge! Praise God, He did it effortlessly. In fact, he love the radiation process soo much and when was told only 11 rounds.. he soo disappointed. He wan more rounds cos after every round, nurses will give him snacks as rewards for well behaved. Among all his rewards,  He love the 100 jesus song CD the best. Thks u very much Nurse June for ur thoughtful act.

tips to share: was told his side effect of his Radiation is nausea, vomit and diarrhea. Remedy: definitely pray to Jesus and consume mangosteens during his treatment. Mangosteens really help cos it a remedy for anti diarrhea. By God Grace, radiation is the easiest treatment for him cos he got the least side effects.